Monday, September 24, 2012
Saturday, September 22, 2012
Headed out to North Park for new lenses in Juliana's glasses. We love the mall. Here is Juliana at the Disney Store. Her favorite store. She really wanted Lamby - from Doc McStuffins. I decided against it since I'm pretty sure we have at least 20,000 stuffed animals. But that was a pretty compelling face.
Friday, September 21, 2012
So, here's the thing. Juliana has a very hard time staying awake through out a day. Part of that is due to the fact that she takes a large amount of seizure meds that do cause drowsiness and the other part is simply put she has Rett Syndrome; and everything she does requires so much work that even the most menial of tasks for her takes so much. So much physically and so much mentally. So, what do you do? Well, initially we tried Ritalin, but this is what it did to my girl.
Wednesday, September 12, 2012
Wednesday, September 5, 2012
Happy Birthday to my dear sweet Juliana. You have grown into quite an amazing little girl. You continue to teach and inspire everyone who you meet. May God keep you safe and healthy, and keep that light in you so strong. We love you!
Sunday, September 2, 2012
Yup, you heard it correctly. She is four and completely self sufficient. She asked, "Can I make my own sandwich." To which I answered, "Why certainly!". And she did it. One open faced sandwich complete with turkey, mayo and cheese and cherry tomatoes on the side. She even got herself a glass of water! Watch out I may have her cook Thanksgiving dinner this year!
Saturday, September 1, 2012
So, we aren't the sharpest tools in the shed. It only took of 5 years of Juliana throwing up on her birthday to finally ask the question, "Do you want a birthday party with 50 plus people in attendance?" Her answer was a very clear NO! I asked her if she wanted birthday cake, to which she answered - YES! and then I asked if she wanted presents to which she answered - YES! So, if you didn't get an invitation this year, it wasn't because you were left off the list. It was because we were honoring what Juliana asked for, which was a low key party with just a few people, cake and gifts. So since the El Paso Family was in town we decided to go Babe's Style. Babe's is a Chicken Farm that serves the freshest and best chicken ever! And if it's your birthday you get to put this disgusting old worn-by-a-million-people hat!