Friday, September 9, 2011

This is Juliana with her Music Therapist Che Ho.  She absolutely loves her time with him.  What is awesome is that in addition to loving the instruments, she often times tries to sing.  Of course, I never manage to capture those sessions on film, but I think this video is very telling.  You can clearly see her wanting to make a sound but not being able to carry it out.  You can see her taking a deep breath and moving her tongue but nothing happens, then the frustration hits and she starts putting her hands in her mouth.  Come on science - my little singer needs a cure!

1 comment:

  1. There will be a cure someday and she and Che Ho will sing together. I pray everyday for a cure for her and the other Rett Girls.